January 4 th Dad accessed Nicole's venaport and drew a blood sample this morning. Mom took the blood to Delnor Hospital and dropped it off at the lab. Nicole's counts were good so she got her full dose of chemo today. The home nurse met dad at school where she gave Nicole her chemo. We hope you are feeling better soon Nurse Jones. (Chemo Countdown 44 Down 8 to go)
January 11 th Nicole went to Children's today. Her counts were good so she got her full dose of chemo today. (Chemo Countdown 45 Down 7 to go)
January 18 th Dad accessed Nicole's venaport and drew a blood sample this morning. Mom took the blood to Delnor Hospital and dropped it off at the lab. Nicole's counts were good so she got her full dose of chemo today. The home nurse met dad at school where she gave Nicole her chemo. We hope you are feeling better soon Nurse Jones. (Chemo Countdown 46 Down 6 to go)
January 25 th Dad accessed Nicole's venaport and drew a blood sample this morning. Mom took the blood to Delnor Hospital and dropped it off at the lab. Nicole's counts were good so she got her full dose of chemo today. The home nurse met mom at school where she gave Nicole her chemo. (Chemo Countdown 47 Down 5 to go)
February 1 st Dad accessed Nicole's venaport and drew a blood sample this morning. Mom took the blood to Delnor Hospital and dropped it off at the lab. Nicole's counts were good so she got her full dose of chemo today. The home nurse gave Nicole her chemo at home today. (Chemo Countdown 48 Down 4 to go)
February 8 th Nicole had her MRI today. She is so proud of herself she did it again without anesthetic. Afterwards her counts were good so she received her full dose of chemo. (Chemo Countdown 49 Down 3 to go)
February 9 th We spoke with Dr Goldman, the MRI shows "Stable disease" I asked Dr Goldman what he thought. He said he is pleased with the results and after we are done with this round of treatment, we will monitor her closely.
February 15 th Dad accessed Nicole's venaport and drew a blood sample this morning. Mom took the blood to Delnor Hospital and dropped it off at the lab. Nicole's counts were good so she got her full dose of chemo today. The home nurse met dad at school where she gave Nicole her chemo. (Chemo Countdown 50 Down 2 to go) {ALMOST THERE !}
February 22 nd Dad accessed Nicole's venaport and drew a blood sample this morning. Mom took the blood to Delnor Hospital and dropped it off at the lab. Nicole's counts were good so she got her full dose of chemo today. The home nurse met dad at school where she gave Nicole her chemo. (Chemo Countdown 51 Down 1 to go) {GETTING CLOSE !}
March 1 st Dad accessed Nicole's venaport and drew a blood sample this morning. Mom took the blood to Delnor Hospital and dropped it off at the lab. Nicole's counts were good so she got her full dose of chemo today. The home nurse met dad at school where she gave Nicole her chemo. (Chemo Countdown 52 Down 0 to go) {She did it She did it SHE DID IT Yeah!!!!!}
March 8 th Nicole saw Dr Goldman today. He is very pleased with her progress and with how well she tolerated the chemo. Nicole will have a MRI in May.
We got some bad news. Mark Staehely lost his battle on Tuesday.
Even though his body is gone. He will remain in all of our hearts for ever.
March 25 th We received a devastating call from a friends daughter when we got home from church services. On March 23, Tina Burn's birthday, she and her 16 year old daughter Julia Schuberth were driving to visit family out west. As they were driving on Interstate 80, a few miles west of Atkinson, Illinois. They lost control, crossed over to the Eastbound lanes and were struck and killed by a Semi tractor-trailer. They were unable to escape the burning car.
March 29 th We attended a funeral mass for the them, after the service was over we drove to the scene of the crash. After surveying the scene, I am certain that they were both killed instantly by the impact and did not suffer from the fire.
April 1 st Dad accessed and flushed Nicole's venaport. We were happy that the access was easy and the port was working great..
June 25th Note: I am sorry I haven't updated for the last couple of months. The hacker caused a lot of problems with our site and I had a lot happen in my life which overwhelmed me.
April 15 th Nicole attended the Someone Special Awards at the Drury Lane Theatre in Oakbrook Terrace with Dad, Michael and Samantha. Poor Mom had to work. We saw the play "Schoolhouse Rock". It was awesome!
April 19th We had a scare. Nicole caught the Chicken pox We took her to Children's. Her blood counts were good so they let her go home with an antiviral drug. It was a long miserable few days for Nicole. She said the best part was the oatmeal baths. Mom and Dad already had it as children. Michael and Samantha had the vaccine and did not get it. Michael got a rash and no fever for a couple of days. We kept both of the twins home from school as a precaution.
May 10th Dad took Nicole to Children's for her MRI. We were not surprised by the results of the MRI . It showed "Stable disease" We kinda expected that since we were told there could be up to 6 months of residual effect from the treatment.
May 11th Mom took Nicole to Children's a visit to the Neuro-Ophthalmologist
May 20th We had a visit from a bug called Viral Gastroenteritis. Dad got it worse this time. 8 days, boy can he get crabby, the rest of us fought it off in a few days.
June 1st Well we completed a year at our new schools. All three kids did great. The Burlington Central School District is in my opinion the best in Illinois. The teachers and staff are friendly, highly qualified and dedicated. Thank you for making our life a lot easier.
June 7th Dad took Nicole and the twins to Children's. Nicole had Labs, An Echocardiogram and a visit with Nephrology. Busy day.
June 28th Mom cancelled Nicole's visit to Children's for her visit with the Cardiologist due to the gas prices and the fact things are very tight for us right now.
June 14th thru the 16th Dad took the kids camping. We had fun and made new friends. Best of all, we gave mom a break.
July 7th We all spent the night camping in Lake Geneva.
July 8th We dropped Nicole off at One Step at a time camp today. Then went back to camp.
July 9th We attended "Celebrate the children" at Nicole's camp. as usual we all had a great time.
July 11th Mom went home as planned and Dad stayed camping with the twins.
July 14th Dad and the twins came home and gave mom a great big hug.
July 22nd Dad and the twins picked up Nicole from camp. She had a blast, as usual.
August 11th Mom took Nicole to Children's for her MRI. It showed "Stable disease" YEAH!
August 15th August and September were very busy for us. we moved back to the Elburn area to a small town 4 miles north of Elburn called Lily Lake. Last year when we moved, we intended it to be for a year or two. The fact that the gas prices stayed high and our landlords raising the rent helped us make the decision to move. Thank God we found a house, which is owned by the Congregational Church of Lily Lake, we are renting it. Thanks to the very nice people of that church we have a nice place to live.
November 1st Mom took Nicole to Children's for her MRI. It showed "Stable disease". There is a suspicious spot which we will watch since with NF they can appear and disappear.
December 12th Mom took Nicole to Children's for an appointment with her Neuro- Ophthalmologist.
As always Please keep Nicole in your prayers
They really DO work!